When I went to fill up the car this morning, a complete stranger pointed at me to the cashier and exclaimed, “He’s so lucky!” This confused me, but it materialised they were talking about the menopause. “You will never know what it’s like,” she went on. Then, “Ignore me. I talk too much.” It wouldn’t …
A trustee of the main organisation supporting people with my condition presented on the topic to a group of senior healthcare professionals this week. They spoke about the lived experience of people with the condition. About common comorbidities, learning difficulties and infertility. Yet of the nearly fifty healthcare professionals in attendance, none reported having heard …
I won’t give a name to the condition or disorder I keep alluding to in my writing. I haven’t even told my parents, siblings or wider family about it yet, and certainly not our children. In fact, the only people who know are my wife, the close friend I walk with most Saturday mornings and …
There’s a new report out which suggests that the chromosome disorder I have been bestowed with is much more common than previously thought. That being the case, healthcare professionals ought to get much better at diagnosing and supporting those afflicted with its symptoms.
